Ms. Tang
Lai Ha
(Camper Hui Tsz Man’s mother)
After my daughter had fallen sick,
I had to quit my job and stay home
to care for her day and night. I had
to take her to the hospital for treatment,
and do follow up visits after treatment
was over. I had to remind her to take
her medication and pay extra attention
to her every movement. All of the
above put immense pressure on me,
both mentally and psychologically.
Although she has been off treatment
for 10 years now, like most parents
I still do not feel comfortable with
her taking part in any activities.
She needs more attention that other
sick children because as a result
of the treatment, she developed other
problems such as a hearing impairment,
diabetic insipidous and adrenaline
deficiency. She is weak physically
and needs to take constant medication
for a continuous period to notice
any great improvement. Just two years
ago, she was found to have diabetes
and now needs to receive four injections
of insulin everyday. Apart from injections
and medication, the amount of food
and medicine she consumes also needs
to be monitored.
Two years ago, I learned about Camp
Quality’s activities for sick
children, and that every child would
be accompanied by a companion. They
not only record the details of each
child and their medical condition,
but also arrange a home visit prior
to every overnight camp so that parents
can tell the companion directly, things
they should pay special attention
to. At each camp, there is always
at least one doctor and nurse present.
Through some of the children who have
participated in the events I have
learned about the details of each
planned event and how the children
are cared for at camp. It was only
after this reassurance that I felt
willing to let my daughter participate
in Camp Quality events. Now she is
a regular camper and I give the latest
updates and medication for my daughter
directly to Camp Quality staff prior
to every event, and remind the nurse
and the companion once again before
they set off.
Apart from encouraging my daughter
to participate in Camp Quality events,
I also refer their services to other
children at the Queen Mary hospital
and their parents too. I do this in
the hope that more people can enjoy
their wonderful services and that
Camp Quality will extend their care
to more children. A substantial number
of the recovered children have joined
the camp as volunteers after they
turned 18, to offer support to other
children. My daughter has also decided
that she will join Camp Quality as
a volunteer when she turns 18. I am
so glad about her decision.
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